Registry Based Research
Main content
Background and vision
The register based research aims to complement randomized controlled trials (RCT) on treatement of multiple sclerosis. The advantage of registry-based studies is to show the effect, discontinuation rate and side effects of different treatment options in a real world setting. This is especially important in settings where it is impossible to conduct RCTs, or in order to idenitfy new indications for already existing medications. Registry studies are also very important in epidemiological and health service quality research.
Ongoing projects
About the Norwegian MS-registry and biobank
The Norwegian MS-registry and biobank has two main goals:
- to ensure quality of health care given to Norwegian MS-patients, focusing on diagnostics and treatment
- to establish registry data and biobank materials for reasearch with the aim of mapping causes and mechanisms of disease, and to optimalize treatment and health care given to the patients.
The MS-registry in Norway was founded in 2001, and i 2005 it was expanded to include biobank materials. By 31.12.2017 there was 7453 persons with MS included in the registry. Available information from the registry includes demografic variables, time of debut and diagnosis, results from diagnostic workup, disease activity, MRI-results, functions scores, attacks, treatments, side effects and more.
For further information, visit The MS-registry`s homepage or find (Norwegian) reports on the The National Service Centre for Quality Registries homepages.
